Toby’s Birthday Surprise at The Esplanade Hotel
Sunday 15th May was such a special day for Toby and his family…
Not only was it a day before Toby’s eleventh birthday, but a day that we’re sure will be a memorable one for the family as it saw one of Toby’s wishes come true.
Toby was diagnosed with Adrenoleukodystrophy (ALD) in March 2015. ALD is a rare degenerative brain disease with symptoms including visual loss, seizures, poorly articulated speech, difficulty swallowing, deafness, reduced mobility and progressive dementia. This deterioration leads to a vegetative state or death, usually within 2-5 years of diagnosis.
Toby asked his mum Emily to ride in a Ferrari for his birthday and thanks to a Facebook appeal his wish came true. We had nine, yes nine, Ferraris on show during the afternoon where friends, family, guests and Newquay residents were able to watch Toby’s dream come true as he sat in a Ferrari. During the few hours a total of £185.12 was raised for the Children’s Hospice SW.
We were so delighted to be part of this special day and wish Toby a very happy birthday!